I have been, however, doing some writing related to MS topics over at Multiple Sclerosis Central. If you don't already know, I'm a featured writer over there - a "patient expert" - or I'd like to say a "patient advocate." I invite you to read and subscribe to my twice weekly blatherings.
Here are some of the things I wrote recently:
"Pass the Power Please- kthnx" in which a discussion of social communities, forums, and patient empowerment is key.
This fits in perfectly with the presentation and panel discussion of which I will be a participant next Wednesday. I'm still coming up with thoughts to share, so if you have any to add, please do so.
"Need Help Paying Drug Bills? Who ya gonna call?" in which I provide links to sources of financial assistance for MS patients needing help with the DMDs.
"Hey!! Turn Up the Lights and Pass Me Some Color!" in which I discuss the onset of Optic Neuritis 8 years, 7 months ago, pre-dating MS diagnosis considerably.
Also today marks the 3rd anniversary of my final "DEFINITE MULTIPLE SCLEROSIS" diagnosis. Whooohooo. Or is that really a day to celebrate? Not sure.
And...... There's this cool feature over the MS Central where folks can ask questions and folks can answer questions. Kinda like a forum of sorts.
Anybody can ask or answer, but I'll let you in on a little secret, just between you and me.
I actually get a token payment for researching and answering the inquiries. Shhhh... you didn't hear that here. So if you are so inclined, please feel free to help a girl out and ask some MS-related (or not) questions over there.
Ok, enough self-promotion.
I hope that you are having a nice day. :-)
Good---
ReplyDeleteI always get heated when I see a large website (such as Multiple Sclerosis Central)that has good writers who perpetuate its existence, but the site itself is getting all the ad revenues. I will try to think of some questions.
i like the idea of the title of "patient advocate." i wonder if we could advocate for that.
ReplyDeleteThanks Jen. I am enjoying Health Central and try not to neglect this little ole blog.
ReplyDeleteYeah, patient advocate sounds kinda nice.
Girl! I am having enough trouble just keeping up with THIS blog of knowledge and the Carnival, let alone another site! Geez...prolific writers. LOL
ReplyDeleteAnd I see the total for Herrad's cushion has been amassed...what's the story there?!?
Linda D. in Seattle